A Tale of Two Rough Nights

Having one rough night is bad enough. Two in a row...! That's inexcusable! Last night I was wracked with a migraine and stomachache SO bad that I was brought to tears. Home alone, I was forced to call for reinforcements at 11pm. Luckily, my friend Michelle came and sat with me and helped me avoid another trip to the emergency room. 

She grabbed an ice pack and snuggled me into bed and put the pack behind my neck and that calmed the worst of it. I was finally able to doze off for the first time all weekend. She kept vigil by my bed most of the night, which was comforting, and made sure that I was alright. 

Tonight, I lie awake with a HORRID stomachache and throwing up everything...even water. I've taken a melt away zofran, used an ice pack (having that on my tummy did NOT feel good), had my back rubbed, and taken phenergan, all to, so far, no avail. 

Come morning, urgent care will have me reenacting the old Mervyns commercial "Open! Open! Open!" Hopefully they'll be able to provide me with some relief. I can only imagine how dehydrated I am. 

It's aweful being awake in such excruciating pain knowing that there's no real place for you to turn. I feel helpless, my parents feel at a loss, the ER tells me they're not the place to turn to, I feel like urgent care will most likely tell me the same thing--what, then, am I supposed to do?! Live with it? Suck it up like a champ? This isn't a bruise, splinter, twisted ankle, or run-of-the-mill stomach issue...this is serious here, people!!

Do doctors take a course in chronic illness? I mean, in how to deal with them at the bedside manner end of it? If they don't, I think they should. Many of them lack, SEVERELY, the proper bedside manner needed to deal with someone living with chronic illnesses. Pleas don't belittle us. That's the last things we need since, often times, coming in to the ER or urgent care was one of the hardest decisions we had to make that day anyhow. 

The Girl With Gastroparesis and the Emergency Room

Making the decision to go to the ER is a difficult one for someone with a chronic illness. You already know that there's not going to be much that the doctor's can do for you, but, at the same time, you want someone to help you. 

That was the case with me last night. 

But being in as much pain as I was in, I just couldn't bare it any more...so in I went. I had my blankie, my hoodie, everything I needed to be as comfortable as possible in that cold environment. 

When the doctor came in he said he had looked over my chart and said that my last gastric emptying study had been "iffy", whatever that means. Whenever the doctors bring up the study they each say something different. This time it was "iffy". I wish they would come to a consensus about it. The he asked me what was going on and for how long. When I explained I had been in indescribable pain for several days he said "the ER is not for chronic conditions it's for when your stomach is bursting open."

Thanks, Doc. 

He also said "I don't care if you're a cop, a doctor, a priest, or Mother Teresa, do you use marajuana, cocaine, or meth?"...uh, no. I've never been asked that before, so that was an odd and interesting interaction. 

He, like most others--until they meet me--have never heard of the GASTRIC pacemaker, so I schooled him on the Gastric Pacemaker and it's purpose. His ears perked up then and he became fairly interested in what was going on then

He did some tests...blood, an x-ray...gave me some medicine and when it all came back normal--as usual--he sent me on my way home.

Just once I would like for a doctor in the ER or urgent care to act like they give two rips about me even though I'm a chronically ill patient. We see SO many doctors and have SO many tests and SO many procedures, why on EARTH would we want to go to the emergency room unless we have to??! A little dignity and respect would be awesome to experience when going in rather than being lectured. 

Riding the Hallway Gurney

Spending my Thursday from 2pm to 8:30pm at the Kaiser Emergency Room is not my idea of excitement, but that is exactly what I did with my afternoon and evening. Let me be one--of countless numbers of people--to tell you::Chronic Illnesses are like vampires and they suck! They steal your life, your joy, your friends, your family, and--if that isn't enough--your money. 

I digress...

I have had left side abdominal pain for a couple of days now--my left side hates me--but I didn't know if it was due to my recently Gastric Neurostimulator adjustment or something else, so I ignored it. Today the pain was so HORRENDOUS I was wanting to double over while at work--can't exactly do that in front of a bunch of teenagers. I gave in and drove myself to the ER thinking "it's the middle of the school day. People will be at work. Kids will be at school. I'm golden!"

WRONG!!

I checked in pretty much at 2pm on the nose; I didn't get put into a bed--a gurney--until 5:25pm! Sweet Mother Of Pearl! My gurney was also in the
hallway...next to the nurse's station...a filing cabinet...and a stone's throw from the check-in area. I know what EVERYONE'S shoes sound like!

Finally, the doctor came (one I had around Christmastime) and we talked about what might be going on. He ordered blood and urine samples--the usual. FIFTEEN MINUTES LATER the nurse came to start the IV and ask me to go change into a gown and do the sample. I think everyone was just working in slow motion. 

Around 7:45 the doctor came back to let me know I have a kidney infection...again. There doesn't seem to be a way to tell WHY I've gotten another one, but because there's pain with Gastroparesis, it's hard to discern the kidney infection pain from the Gastroparesis pain. He ordered for me to get a little more morphine before I was released and he sent me home with antibiotics, Phenergan, and pain meds. 

Being home now in my comfy bed feels nice. My tummy still feels painful, but I'm in a bit of a blissful fog still. I highly desire what I call a "left-ectomy" as that is the side that always gets the kidney infection, has Alfred my Gastric Neurostimulator, and is close enough to my stomach--haha. Any takers on giving me that left-ectomy, give me a call!

Merry Christmas and A Happy Trip to the ER!!

I CLEARLY know how to celebrate Christmas because my trip to Urgent Care on Saturday was, apparently, not enough. Today (December 22, 2014) I went to the Emergency Room. Initially, I thought it was going to be my Urgent Care experience all over again because the attendant checking people in took my card, asked me what was wrong, and then told me to sit down with everyone else. Internally I was thinking:: "Oh, no, not again!" Particularly when I sat down and there was people whistling--WHISTLING--in the waiting area. 

I got called back and had my vitals taken--lost 5lbs since my last weigh-in (not good)--and my blood pressure and heart rate was high for me (145/86 and 106) and--just to make it a little more special--my temperature was 99.1 (I'm normally a chilly 97.2). They put me in a room and bed, handed me a gown and blanket, and thus began my stay in Kaiser Riverside's Emergency Room. 

The doctor came and examined me after my IV was placed. He was honest and said that he didn't know much about my situation, so he would seek the help of the on-call thoracic surgeon once x-rays were taken. They gave me, intravenously, a shot of toridal and reglan, for pain and vomiting. After looking at my urine sample and blood, it came back that I had a pretty bad kidney infection--go big or go home! I ended up having to wait quite some time for x-rays, but I finally made it there. When I came back and my doctor consulted with the thoracic surgeon, they felt that my gastric neurostimulator was where it should be, but that my colon was pretty backed up--my parents always said I was pretty full of it! In the end, he said it was a good thing I came in and didn't put it off until Friday, which is when I see my surgeon again. The infection in my kidney would have been worse and who knows about my colon being backed up! 

I was sent home with an antibiotic and pain medication, and told to use miralax for a few days. I'm thankful that they looked and listened to what I had to say and didn't just sluff me off like urgent care did a couple of days again. I realize it's the holidays and people would prefer to be at home than at work. BUT I most certainly don't want to be in urgent care during the holidays either! 

It's Not the Flu! I have A PACEMAKER In My Stomach!

Tonight, (December 20, 2014), I found myself in urgent care battling the increasing pain that I have been fighting for a couple of days, lack of sleep, and vomiting--what would Gastroparesis be without the vomiting. When I arrived at Kaiser--yes, I have Kaiser and I actually like them...normally--I told the receptionist that I have Gastroparesis and a gastric neurostimulator and I don't feel good. When he asked what my symptoms were I said "pain...my whole belly and up my side. And vomiting. I haven't kept anything down." For cornsake, sunshine, I'm carrying a bright red barf bowl!

Then I got called back and did all my vitals (103/64 and 74! That's the best they've been in a while!) and then put into a room. I had my mom recline me on the exam table because it hurts so much to sit up--that was an adventure--and then the doctor came. After asking me, initially, what was going on, he addressed my mom from then on out. Sorry, but am I not the patient?! Am I not the one sick?! Later I told my mom, "maybe I looked too far gone or something and he felt he could only talk to you", but I don't think that was the case. He asked me, "so what do you want to do?"

"Well, SIR, make the PAIN and VOMITING go away!" Is what springs into my mind!

So he gave me a shot in my bum of morphine and Zofran. I continued to dry heave because, by that time, I had nothing more to upchuck. So he gave another shot of zofran. In the course of waiting to make sure I don't react to it, we hear a doctor and at least one nurse outside my door having a conversation::

Doctor:: I have two patients with abdominal pain. 

Nurse:: Well, it seems nobody wants to work right now. 

😳😳😳😡😡😡😳😳😳😡😡😡

I replied, rather loudly--though I doubt they heard me:: I'm sorry the fact that we are sick is bothering you!

😡😤😡😤😡😤😡😤😡😤😡😤

No person in their right mind asks to be sick. No person in their EVERLOVING mind asks to have a chronic illness. We are not there, particularly someone with a chronic illness such as myself, because we want to see their faces, disrupt their day, etc. I realize that nursing and being a physician is a job like any other, but you are dealing with SICK people! We don't need to hear bullpucky like that!

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Shortly after that my nurse came in and announced I was leaving and I was packaged up into a wheelchair and sent home. The ENTIRE ride I felt SO nauseous and in pain. I managed to eat a fruit strawberry Popsicle when we got home just so I had SOMETHING in my stomach. My mom figures that if I'm no better or worse tomorrow, we'll find our way back over there. 

Tonight, I think I encountered a nurse and a doctor who neither knew what Gastroparesis not a gastric neurostimulator was. And because of that, I was lumped into the general population when it comes to abdominal pain and vomiting. It wasn't fair, though it's hardly the first time nor the last, that I've experienced it.

Education, people. I'm not asking for experts in urgent care or the ER, but a basic running knowledge and some respect would be nice.