This
week marks something special, I guess you could say, in my life. It's
not something happy, but it's something significant. Thursday
February 19, 2015 marks the day that I became ill, marks the day that
I first started getting vertigo, marks the day that the snowball that
started it all began to roll. Thursday February 19, 2015 is my Five
Year Sick-A-Versary.
I
expect presents.
In
so many respects it's hard to believe that it's been Five Years since
I've gotten sick. Quite frankly, it feels like I've been ill for an
entire lifetime. The days, the months, and the years have all blended
together seamlessly into one big vomitous blur (pun intended) that
will, on the one hand, never end and, on the other, has flown right
by. When you're a Chronic Illness Warrior, you are not subject to
space or time...it's like you're a special character in Star Trek
or something. You come to remember some things VERY
acutely—generally, it's things you would rather forget—and other
times you stumble over your own words trying to remember even the
simplest of tasks—what's my name again?
In
the last five years, I have gotten diagnosed with Gastroparesis,
chronic migraines, chronic vertigo, peripheral neuropathy, and POTS.
I have had my gallbladder removed and had a gastric neurostimulator
placed in my stomach. I returned to work after not being able to work
for a year. I have been in a major car accident (that wasn't my
fault, but I was able to walk away from) that worsened by symptoms. I
have had COUNTLESS
urgent care and emergency room visits due to my gastroparesis. But,
most importantly, I made friends with fellow Chronically Fabulous
people who have helped encourage me along the way.
Head shot before I got Gastroparesis |
Gastroparesis
has changed my life drastically. It has slowed me down, made me more
thoughtful, made me tougher, more assertive, a better listener, and
thinner! There are some positives in this journey as a Gastroparesis
Warrior, I promise. I was overweight before I got Gastroparesis—I
weighed 289lbs—and have lost 116lbs because of it; a much needed
weight loss, but in a VERY
bad way. I have become peoples' sounding boards because they know I
will sit and listen to them, a quality I have not found in medical
staff and do not want to repeat in my own life. Similarly, I find
that I have to assert myself, with medical staff—No, I do NOT
want to eat for synthetic cow tasting beef broth!--so I have been
able to use that in my professional life working with teenagers. But,
given that I feel sick CONSTANTLY,
making it through the day is difficult...very difficult. Every fiber
of my being is telling me to give up, you're not strong enough. Give
up, the pain is too much. Give up, you're too tired to go on. Give
up, it's not really worth it. But I know that all isn't true and I've
become tougher because I keep on fighting despite the pain, despite
the fatigue, despite feeling gross all of the time.
Five
years has taught me that I can LIVE
with Gastroparesis. It's not an EASY
existence by any means. There are days when I just cannot get out of
bed and, where there had been a time that had bothered me, now it
doesn't. I realize that I have an energy limit that I have and some
days it runs out quicker than others...and that's okay. I have come
to realize that a day eating nothing but Cheez-Its is a day better
than eating nothing. And a day spent doing nothing but breathing is
better than one where I don't exist.
April 2010 |
July 2010 |
October 2010 |
December 2010 |
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