Showing posts with label Warrior. Show all posts
Showing posts with label Warrior. Show all posts

Wednesday, June 1, 2016

When It Feels Like Christmas On Supply Delivery Day

Every Wednesday is Supply Delivery Day, it's like a Medical Supply Christmas that comes ones a week for those who live their lives permanently or temporarily attached to some kind of medical device. In my case, I have a PICC line (peripherally inserted central catheter) so that I can receive TPN (total parenteral nutrition) 12 hours a day due to Gastroparesis. 


At first, when all of those supplies showed up at my house along with all of the devices, it was daunting. I felt as though I was sitting in a sea of never ending syringes and alcohol swabs and saline flushes...and I didn't know how to use ANY of them! My mind and my heart felt overwhelmed by the boxes and bags of equipment splayed out around me. "When did my life become an episode of ER?" kept running through my mind. 


But as the tears began to form in my eyes and my heart raced, something deep inside me told me that I had to conquer this like I've conquered so much before it. And as the supplies were organized and my set up became part of my routine, it has all become less discouraging and more a part of my life. And when supplies begin to run low, I find myself looking forward to Supply Delivery Day!

And it's like Christmas or a birthday every week as you open up boxes and bags of supplies; mostly of things you were expecting (TPN, vitamins, alcohol wipes) and things you weren't because you forgot about them (flushes, needles, syringes, stockinettes, batteries, etc.) And, as you rifle through the newly arrived supplies, you realize just how much it feels like Christmas in the middle of June. 

Viewing these weekly deliveries as positive as opposed to added stressors to the Chronically Ill Life, it helps to manage this often intimidating, scary, and exhausting aspect of being ill. 





 

Thursday, October 1, 2015

Invisible Illness Week



It is Invisible Illness Week. A VERY important week to many people. 

And I'll tell you why...

There are estimated to be 130 MILLION people with at least one moderate to severe invisible/chronic illness in America. This means that they do not use a cane, walker, wheelchair, or other assistive device to get around. They live a life of pain, nausea, mental sickness, vomiting, etc without anyone else knowing because, when you immediately look at them, you have no idea any of this is going on. 

Due to the fact that one does not LOOK sick upon sight, doctors, friends, and family often dismiss the symptoms that the patient is complaining of; thus, suicide rates are high among those within the Invisible Illness Community. Up to 70% of suicides are reportedly related to chronic illness or physical pain. Sadly, half of those who commit suicide within the Invisible Illness Community are under the age of 35! This is a DAUNTING statistic. 

From my own personal experiences, I can tell you that, having an illness that is not immediately noticeable to people sucks. Having ANY disease sucks PERIOD, but having one that people can't SEE and IDENTIFY with is the pits. Having an UNPRONOUNCEABLE disease is no fun either (but that's trivial). 

At the end of the day, we want...
LOVE...
AWARENESS...
UNDERSTANDING...
COMPASSION...
PEACE...
EQUALITY...